Monday, November 20, 2006

Tuck in Your Tubing

Charlie woke at 5 am yesterday, hobbled into our room and said his tummy hurt and he had ketones. He was 470 something. He threw up. We cursed the pump yet again before seeing that Charlie was right. He had large ketones. Doctors and pump educators chalked it up to a bad site. We're growing weary of bad sites. It's happening way too often.

I wish ketone wasn't in my 4 year old's vocabulary. As his treatment for diabetes changes, we're constantly learning new words that I wish we hadn't. Bolus should be the name of an evil alien emporer that Charlie draws. Basal (basil) should just be an herb. The Ketones should be a 50's doo-wop group.

I even catch myself as I too am changing with this new pump lifestyle.

"Charlie, tuck in your tubing."

I'm like a robot dad talking to my robot son.

"Charlie, tuck in your tubing. Didn't mom ask you three times to change into clean sprockets? And for heaven's sake, when was the last time you reconfigured your vision processing system module?"

Despite our daily struggles with this all-consuming disease, I am blessed and thankful for my beautiful family. We're pretty fortunate. Charlie can run like lightning, he can swing like a monkey. He can hear, he can see. He can laugh.

Man, can he laugh.

Not everyone is so lucky.

Happy Thanksgiving.

11 Comments:

At 1:03 PM, Blogger Kerri. said...

Carey,

What a terrific post here. The "robot dad talking to his robot son" bit made me laugh out loud.

I need to laugh at this sometimes. Or else I feel overwhelmed. Finding the "funny" in this mess makes it an easier burden to bear.

Happy Thanksgiving to you and your beautiful family. Keep laughing.

 
At 10:19 AM, Blogger Chris said...

Hi,
First time on your blog. It's great! Thanks for stopping by mine too.
I am with you on the new language and vocabulary that our children have to adopt. It doesnt seem fair at times. One of the cliches i was saying when emma was dx'd was "its a life sentence not a death sentence". Sometimes even a cliche makes me feel better. And yes they run oh so fast, laugh, and play very hard.
Great post.
Chris

 
At 11:59 AM, Blogger cHoCoMiLkRoCkS said...

hey!
you're son is so cute. he's a brave little man.

i hope he is feeling better.

have you given any more thoughts on keeping the pump? it's taken me over a year to get mine set correctly. it takes time but it's worth it when you get there.

all the best,
vicki x

 
At 12:24 PM, Blogger Carey said...

kerri -

Thanks. I see no other alternative but to laugh amidst the madness. Happy Thanksgiving.

Chris -

Thanks for dropping by the blog. If you don't mind, I'd like to add your link to my site.

Vicki -

Thanks for visiting my blog. I'm for riding it out and sticking with the pump, but my wife is starting to feel that maybe he's too young right now. When one day is perfect and the next day is horrible, it's tough to make an educated adjustment to basal/bolus levels.

I'm sure many people feel this way at first, but we really don't know what can change to make things better. The kid couldn't be more routine in his diet. Same thing every day, yet fluctuating blood sugars and very little in the way of trends.

Thanks for the encouragement. Hopefully we'll get there.

 
At 5:56 PM, Blogger Chris said...

I was hoping you would. I added yours if thats cool.!?

 
At 1:04 AM, Blogger George said...

I just found your blog! I am going to add a link to mine right now!

And I am with you, Family is quite the blessing!

Happy Turkeyday!

 
At 4:20 AM, Blogger cHoCoMiLkRoCkS said...

your little boy is so cute. well done on raising all that money. that's brilliant :)

 
At 6:19 AM, Blogger OK.NOWwhat said...

superdad...superkid...wowie. i just found your blog, and it was just the thing to deliver a wake-up smack to someone with a morning read that turned her, once again, into a whining, self-pitying, aging diabetic. (er...that would be me.) whoever is in charge of blessings, may he shower them abundantly on you and your glorious son.

 
At 7:12 PM, Blogger Vivian said...

Those laughs make all the difference don't they? Keep laughing with him dad and it will all be peachy.

 
At 4:28 PM, Blogger Shannon said...

Hi,

I found you through Chris's blog. Your son is adorable. I'll have to read through more of your posts.

I couldn't carry off talking robot talk to my son. He'd correct me too much.

Brendon is on the pump as well. I love it and so does he.

 
At 7:02 PM, Blogger MileMasterSarah said...

Im hoping to put my peanut on a pump once she needs insulin with meals. This was funny, I can imagine having that conversation with my peanut, well the tuck in your tubing part but not the rest

 

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