Tuck in Your Tubing
Charlie woke at 5 am yesterday, hobbled into our room and said his tummy hurt and he had ketones. He was 470 something. He threw up. We cursed the pump yet again before seeing that Charlie was right. He had large ketones. Doctors and pump educators chalked it up to a bad site. We're growing weary of bad sites. It's happening way too often.
I wish ketone wasn't in my 4 year old's vocabulary. As his treatment for diabetes changes, we're constantly learning new words that I wish we hadn't. Bolus should be the name of an evil alien emporer that Charlie draws. Basal (basil) should just be an herb. The Ketones should be a 50's doo-wop group.
I even catch myself as I too am changing with this new pump lifestyle.
"Charlie, tuck in your tubing."
I'm like a robot dad talking to my robot son.
"Charlie, tuck in your tubing. Didn't mom ask you three times to change into clean sprockets? And for heaven's sake, when was the last time you reconfigured your vision processing system module?"
Despite our daily struggles with this all-consuming disease, I am blessed and thankful for my beautiful family. We're pretty fortunate. Charlie can run like lightning, he can swing like a monkey. He can hear, he can see. He can laugh.
Man, can he laugh.
Not everyone is so lucky.