A Heaping Batch of Burning Eyes
We had several helpings of highs at La Pièce de Charlie last night that began with a lovely complimentary appetizer - fresh infusion tube stuffed with a light burgundy ègoutture de sang (blood dripping). Out of this world! Oh, hi. My son Charlie will have the number 320, the number 380 and then the number 410. I know, he's very hungry. Sorry, I hate to be a pain, but can he also have a syringe on the side? With 1.5 units of insulin? Yeah, you can just bring it out with the 410. Thanks.
How are your ketones here? Large? Mmm, sounds really good. Hmm, we DID just have large ketones the other night. What to choose, what to choose. You know what? That's fine. We'll take the large ketones. We'll make room for it.
Do you recommend anything that goes well with the large ketones? Ooh, sounds so exotic. Sure, we'll try the projectile vomiting. I suppose 8 ounces will be plenty. Oh, and a bucket. Does that also come with dry heaves? Cool.
Well I guess that covers it. Wait, sorry. One more thing. I don't see this on the menu, but we had this once before and absolutely loved it. Do you think the chef could whip up a small portion of crying baby who refuses to go back to bed? Preferably while we're having the projectile vomiting. 2 am? Perfect.
OK, last thing. I promise. What time do you guys start serving room service in the morning? 6:30 am? Super. If possible, my wife and I would like to share a heaping batch of the burning eyes.
Fantastic. Thank you.
posted by Carey @ 7:34 AM
16 comments
16 Comments:
I won't complain about not sleeping anymore. Sending any strength I can to you and the fam.
Oh good lord, this made me laugh out loud at my desk. Despite the fact that the circumstances are not ideal (understatement, anyone?), poking fun at it hopefully helps.
I know it helps me. :)
Oh Carey, I'm so sorry.
Is Charlie feeling better now? How about you and Susanne?
Chops, complain all you want. I'm still getting more sleep than you are. Thanks for sending those vibes over.
Kerri, It does help to poke fun. May not be everyone's methodology, but works for me.
Penny, Thanks for your concern. Not good. Not good at all. Charlie, that is. His highest was 540 today. Manual shot after manual shot. He's not coming down. As if he's suddenly resistant to insulin. Waiting for the next call from home. Praying. Something going on in his body. Put him through hell with three site changes in one day only to now realize it's not the pump nor is it the infusion set. Sigh. Hate that.
Is the insulin crapped out? Use a new bottle. Rule out all the variables you can.
Major suckage man! I hope that you'll update us when you figure out what's causing all the trouble?
I can't even laugh at this. Sick days like that bite the big one.
BTW, insulin lasts 3 weeks...I don't care what the manufacturers say. Like Kerri said, maybe the insulin is crapped out.
Not that I didn't think the post was clever and indeed humorous though!
Another horrible night. The insulin did eventually bring him down to about 115 at bedtime. We thought we were in the clear (silly us). Spiked higher and higher through the night, peaking at 410. No one knows what the hell is going on.
I don't know how it works with bad insulin. Would it just not work at all or would it sort of come and go? Because we are seeing it work obviously. He woke up around 100 after a few overnight corrections via needle and so far so good this morning (knock on Formica).
Carey,
Reading your response to my last comment brought tears to my eyes. Damn this stupid disease!!
I know how frustrating this is must be for you guys. To watch your child go through times like this is torture.
I hope you will update us when you get a chance. Until then you and your family will be in my thoughts and prayers.
Ha ha
You posted your comment just before me. Thanks for the update.
I'll still keep you in my thoughts and prayers though.
You shouldn't need so many corrections.
Throw out the insulin and start a new vial. See how it goes.
Keep us posted :)
Do I sound bossy?
When this happens to us, my daughter and I head to the er to get hydration and an insulin drip. i test every 1/2 hr or so and watch it come down. once the IV goes in, which she hates, she starts to feel better and usually sleeps. (she sleeps through finger pokes regularly) this has happened 2 times in 2.5 years. on the flip side, if she starts vomiting after taking insulin, she needs the er for hydration and sucrose as she crashes. this has happened 4 times in 2.5 years. we are lucky to have good insurance and live near a great teaching hospital. also lucky to have an endo who calls the er docs and tells them "let the mom do the diabetes, you do the rest". Once vomiting starts, the hydration really helps. the downsides are the environment, esp. the PICU if the highs take too long to drop, missing work and coverage for the other kids (i'm a solo mom).
Good luck to you all.
Carey,
Just a question for you, is Charlie still using his pump for his basal insulin?
Is it possible that it's not working correctly and he's not getting his basal insulin, therefore causing higher sugars and the need for more corrections with a syringe?
Just a thought.
Hi Penny. He is still using pump for basal and also bolus now. It is possible I suppose. I just don't know. He's having a better day today. He even went as low as 55! Figures.
Thanks.
I couldnt decide to laugh or cry. So i did both. This sucks more than anything else.
I really love the way you can take this in a different form other than feeling sorry for what hand you have been dealt. You are playing it.
Take care of your guy!
Chris
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